Tourette Syndrome Association

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The Tourette Syndrome Association (TSA), based in Bayside, New York, United States, is a non-profit voluntary organization and the only national health-related organization serving people with Tourette syndrome. It was founded in 1972 by a group of parents of children with Tourette syndrome, along with Arthur K. Shapiro and his wife, Elaine.[1]

The TSA's mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. It has 35 U.S. chapters, 300 support groups, and international contacts around the world.[2]

The TSA "has been the major driving force in scientific and clinical progress relevant to TS", using its resources to encourage research and scientific initiatives,[3] and working tirelessly to promote information about TS.[4] The TSA has worked for recognition of Tourette syndrome as an organic disorder, lobbying the public, the government, and physicians. They have become adept at winning grants and shaping media treatment of the condition.[1] Since its inception, research spurred by the TSA has grown in volume and sophistication, including controlled treatment studies and studies of pathophysiology and etiology.[5] Many new research findings are the direct result of the TSA's "active facilitation of large collaborative research consortia in genetics, neuro-imaging, clinical trials, and the behavioral sciences", and their "concerted effort to identify current research advances, disseminate them among the scientific and clinical communities, and establish networks of basic and clinical scientists from all over the world".[3]

In 2005 HBO and the Tourette Syndrome Association produced an Emmy Award-winning documentary film, I Have Tourette's But Tourette's Doesn't Have Me.

Notes

  1. 1.0 1.1 Pagewise, Inc. Tourette syndrome. Retrieved on 29 June 2006.
  2. Tourette Syndrome Association. About TSA. Retrieved on 16 July 2006.
  3. 3.0 3.1 Walkup, JT, Mink, JW, Hollenback, PJ, (eds). Advances in Neurology, Vol. 99, Tourette Syndrome. Lippincott, Williams & Wilkins, Philadelphia, PA, 2006. p. xv.
  4. Cohen DJ, Jankovic J, Goetz CG, (eds). Advances in Neurology, Vol. 85, Tourette Syndrome. Lippincott, Williams & Wilkins, Philadelphia, PA, 2001., pp. xvii–xviii.
  5. Black, KJ. Tourette Syndrome and Other Tic Disorders. eMedicine (March 22, 2006). Retrieved on 27 June 2006.

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