The Stennis Foundation
You don't need to be Editor-In-Chief to add or edit content to WikiDoc. You can begin to add to or edit text on this WikiDoc page by clicking on the edit button at the top of this page. Next enter or edit the information that you would like to appear here. Once you are done editing, scroll down and click the Save page button at the bottom of the page.
Please Take Over This Page and Apply to be Editor-In-Chief for this topic: There can be one or more than one Editor-In-Chief. You may also apply to be an Associate Editor-In-Chief of one of the subtopics below. Please mail us [1] to indicate your interest in serving either as an Editor-In-Chief of the entire topic or as an Associate Editor-In-Chief for a subtopic. Please be sure to attach your CV and or biographical sketch.
The Stennis Foundation is a registered nonprofit organization, in accordance with IRS code, section 501(c)(3). The Foundation is primarily a fundraising organization, raising money, and then sending it to various research projects. Currently, The Stennis Foundation supports research at Duke, Kennedy Krieger, and San Raffaele Institute in Milan, Italy. The Stennis Foundation is determined to make a difference, and bring an end to these insidious diseases known as the Leukodystrophies.
Besides being a nationwide organization, The Stennis Foundation is a registered charity in the states of Texas, Tennessee, New Jersey, Massachusetts, and Michigan -- having been recognized and granted credibility in these states. Online donations can be given through the Foundation's main website at www.stennisfoundation.org, using PayPal; or donations of any amount can be sent to:
The Stennis Foundation
PO Box 30065
Amarillo, TX 79120
The Stennis Foundation's commitment
According to their web site, The Stennis Foundation is committed to raising public awareness regarding the Leukodystrophies, and funds for Leukodystrophies research. Their goal is to forcefully advance research through proper funding. Their mission statement is "One Step Closer to a Cure."
Beginnings
The Foundation's beginnings were inspired by Dr. Sam Stennis, a former optometrist in Amarillo, Texas, who, at age 47, was diagnosed with adult-onset Metachromatic Leukodystrophy.
Conditions of interest
- Leukodystrophy
- Metachromatic leukodystrophy
- Adrenoleukodystrophy
- Krabbe's disease
- Alexander's disease
- Canavan disease
- Pelizaeus-Merzbacher disease
External links
Acknowledgement and Attribution Regarding Sources of Content
Some of the initial content on this page may be incorporated in part from copyleft sources in the public domain including wikis such as Wikipedia and AskDrWiki. Drug information for patients came from the The National Library of Medicine. Infectious disease information may have come from the Centers for Disease Control (CDC). Differential Diagnoses are drawn from clinicians as well as an amalgamation of 3 sources: 1.The Disease Database; 2. Kahan, Scott, Smith, Ellen G. In A Page: Signs and Symptoms. Malden, Massachusetts: Blackwell Publishing, 2004:3; 3. Sailer, Christian, Wasner, Susanne. Differential Diagnosis Pocket. Hermosa Beach, CA: Borm Bruckmeir Publishing LLC, 2002:7 .
