ELSI

WikiDoc Resources for ELSI
Articles
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Media
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Evidence Based Medicine
Cochrane Collaboration on ELSI Bandolier on ELSI TRIP on ELSI
Clinical Trials
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Guidelines / Policies / Govt
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Commentary
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Definitions
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Patient Resources / Community
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Continuing Medical Education (CME)
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Experimental / Informatics
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Overview

ELSI stands for Ethical, Legal and Social Issues. It's a term associated with the Human genome project. This project didn't only have the goal to identify all the approximately 24.000 genes in the human DNA, but also to address the ELSI that might arise from the project.

5% of the US annual Human genome project (HGP) funds is allocated to address associated ELSI of the work.

The failure of ELSI to help the impacted groups

As Debra Harry, Executive Director of the Indigenous Peoples Council on Biocolonialism (IPCB), would explain; despite a decade of ELSI funding, the burden of genetics education has fallen on the tribes themselves to understand the motives of Human genome project and its potential impacts on their lives.

Meanwhile, the government has been busily funding projects studying indigenous groups, without any meaningful consultation with the group. (See Biopiracy)

The main criticism of ELSI is the failure to address the conditions raised by population-based research, especially with regard to unique processes for group decision-making and cultural worldviews. Genetic variation research such as HGP is group population research, but most ethical guidelines, as Harry mentions, are not euipped to address group rights. She is making such claim because those research represents a clash of culture: indigenous people's life revolves around collectivity and group decision making whereas the Western culture promotes individuality.

Harry suggests that one of the challenges of ethical research is to include respect for collective review and decision making, while also upholding the traditional model of individual rights.

References

Ms. Harry's comments of the International Forum on Globalization Teach-in held in New York City in February 2001 were based on her recent article, Biopiracy and Globalization: Indigenous Peoples Face a New Wave of Colonialism, published in the magazine Splice, January/April 2001 Volume 7 Issues 2 & 3 ([2])

Cost Effectiveness of ELSI

| group5 = Clinical Trials Involving ELSI | list5 = Ongoing Trials on ELSI at Clinical Trials.gov • Trial results on ELSI • Clinical Trials on ELSI at Google

| group6 = Guidelines / Policies / Government Resources (FDA/CDC) Regarding ELSI | list6 = US National Guidelines Clearinghouse on ELSI • NICE Guidance on ELSI • NHS PRODIGY Guidance • FDA on ELSI • CDC on ELSI

| group7 = Textbook Information on ELSI | list7 = Books and Textbook Information on ELSI

| group8 = Pharmacology Resources on ELSI | list8 = AND (Dose)}} Dosing of ELSI • AND (drug interactions)}} Drug interactions with ELSI • AND (side effects)}} Side effects of ELSI • AND (Allergy)}} Allergic reactions to ELSI • AND (overdose)}} Overdose information on ELSI • AND (carcinogenicity)}} Carcinogenicity information on ELSI • AND (pregnancy)}} ELSI in pregnancy • AND (pharmacokinetics)}} Pharmacokinetics of ELSI •

| group9 = Genetics, Pharmacogenomics, and Proteinomics of ELSI | list9 = AND (pharmacogenomics)}} Genetics of ELSI • AND (pharmacogenomics)}} Pharmacogenomics of ELSI • AND (proteomics)}} Proteomics of ELSI

| group10 = Newstories on ELSI | list10 = ELSI in the news • Be alerted to news on ELSI • News trends on ELSI</small>

| group11 = Commentary on ELSI | list11 = Blogs on ELSI

| group12 = Patient Resources on ELSI | list12 = Patient resources on ELSI • Discussion groups on ELSI • Patient Handouts on ELSI • Directions to Hospitals Treating ELSI • Risk calculators and risk factors for ELSI

| group13 = Healthcare Provider Resources on ELSI | list13 = Symptoms of ELSI • Causes & Risk Factors for ELSI • Diagnostic studies for ELSI • Treatment of ELSI

| group14 = Continuing Medical Education (CME) Programs on ELSI | list14 = CME Programs on ELSI

| group15 = International Resources on ELSI | list15 = ELSI en Espanol • ELSI en Francais

| group16 = Business Resources on ELSI | list16 = ELSI in the Marketplace • Patents on ELSI

| group17 = Informatics Resources on ELSI | list17 = List of terms related to ELSI

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