Albinism medical therapy: Difference between revisions

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==Overview==
==Overview==
Albinism is a condition that cannot be "cured" or "treated" per se, but small things can be done to improve the quality of life for those affected. Most importantly to improve vision, protect the eyes from bright lights, and avoid skin damage from sunlight. The extent and success rate of these measures depend on the type of albinism and severity of the symptoms; in particular, people with ocular albinism are likely to have normally-pigmented skin, and thus do not need to take special precautions against skin damage.


==Sun protection=
It is vital that people with albinism use sunscreen when exposed to sunlight to prevent premature skin aging or [[skin cancer]]. This poses a problem for those who cannot afford [[sunscreen]], especially in regions with high exposure to sunlight, as in Africa. Special sun protective clothing and swimsuits are available and are a good alternative to excessive use of sunscreen.
Use of [[sunglasses]] and hats with wide brims can make the glare outside bearable. Other things that can help people with albinism are avoiding sudden changes of the lighting situation (switching the light on in complete darkness), using dimmable switches and adding tint to car windows or blinds to normal windows. Lights should be yellowish rather than blue and not point towards the usual position of a person with albinism (like their seat at a table). When possible, people with albinism generally prefer to have the light on their backs rather than face it.
===Vision aids===
[[Glasses]] and other vision aids, [[large-print]] materials and [[closed captioning]], as well as bright but angled reading lights, can help individuals with albinism, even though their vision cannot be corrected completely.  Some albinistic people do well using [[bifocals]] (with a strong reading lens), prescription reading glasses, and/or hand-held devices such as magnifiers or monoculars.<ref name="Facts_Albinism"> {{cite web |url=http://albinism.med.umn.edu/facts.htm |title=Facts about Albinism}} |first=Richard |last=King}} </ref>  [[Contact lenses]] may be colored to block light transmission through the <!--commenting out unexplained term for now: aniridic -->iris.  Some use bioptics, glasses which have small telescopes mounted on, in, or behind their regular lenses, so that they can look through either the regular lens or the telescope. Newer designs of bioptics use smaller light-weight lenses. Some US states allow the use of bioptic telescopes for driving motor vehicles. (See also NOAH bulletin "Low Vision Aids".)<!-- Link that. Where is it? --> 
Although still disputed among the experts, many [[ophthalmology|ophthalmologists]] recommend the use of glasses from early childhood onward to allow the eyes the best development possible. 
[[Optometry|Optometrists]] or ophthalmologists who are experienced in working with [[low vision]] patients can recommend various optical aids. Clinics may provide these aids on trial loan, and provide instruction in their use. <ref>{{cite web |url=http://www.afb.org/ |title=The American Foundation for the Blind}}</ref> maintains a directory of low vision clinics.


==References==
==References==

Revision as of 18:24, 20 August 2021